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Some of Tam’s favorite websites related to dementia and Alzheimer’s disease:

Alzheimer’s Association — A global organization dedicated to Alzheimer’s care and support, and the largest private, nonprofit funder of Alzheimer’s research.

Alzheimer’s Disease International — Alzheimer’s Disease International (ADI) is the umbrella organization of Alzheimer’s associations around the world.

Alzheimer’s Foundation of America — Wonderful source for caregivers and those who want to learn more about Alzheimer’s disease.

Alzheimer’s Society — A U.K.-based organization with lots of good information.

AlzOnline — A wonderful resource for families working with persons diagnosed with Frontaltemporal Dementia.

Area Agency on Aging — Every region has one, your federal government's go to resource in your community.

The Association for Frontotemporal Degeneration — A wonderful resource for families working with persons diagnosed with Frontaltemporal Dementia.

Caring.com — Practical tips for the at-home or professional caregiver.

Healthfinder.gov — Lots of info on a variety of health topics, including help locating medical professionals.

Huntingon’s Disease Society of America — Resources for those dealing with Huntington’s disease dementia.

Lewy Body Dementia Association — Great info for anyone who faces Lewy body dementia.

Mayo Clinic — We love this website for how it translates complicated doctor jargon into language that makes sense non-medical folks.

mm.learn.org — Online videos for caregivers.

National Institute on Aging — The U.S. Department of Health and Human services website that gives facts about health and aging as well as research activities.


Books

Untangling Alzheimer's

Untangling Alzheimer's takes the mystery and fear out of Alzheimer’s disease and other dementias by making a complex, often-overwhelming disease process understandable to all readers.

 

The Final Year...
The Final Moment

The Final Year...The Final Moment walks caregivers through the signs exhibited by persons entering into the last stage of life. With a special section for talking to children, the book is direct, compassionate and understanding.

 

DBAT

Download this free tool to track the Stages of Dementia or the Stages of Alzheimer's.

 

ADAT

Download this free Actively Dying Assessment Tool.

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